November 5th, 2009. AKA 15 months old now.

Yes I'm a bad bad mom.   I didn't do a Happy Birthday post for Janna (tsk tsk)   I've been back at work the past 3 months and we are blessed to have Grandma taking care of Janna full time.
Some of the good news lately has been:

• her hips were given a pass by ortho
• she still seems seizure free
• she is developing slowly at her own pace, it's great to see the tiny improvements she's making.
• we should have her specialized seating and stroller in the next month along with a specialized therapy wedge designed by our PT
• we should be getting a stander for her within the next 4 months
• all and all her quality of life is good, we even see a rare glimmer of a smile from time to time.
• We've found a wonderful respite worker who Janna seems to respond well to.

I'm also thankful to have the flexibility to work from home and although I have needed to travel, so far we're all coping ok with the transition - if not for a little tiredness.  It would be great if Janna slept though the night but at the moment a full night sleep is few and far between for her.
Overall she is doing well though.  Still not sitting, still not smiling a whole lot or laughing, still doesn't have the ability to grasp and pick up toys, still doesn't have head control and is hypotonic through her neck and trunk but we do see small improvements in her during tummy time and in her ability to lift and maintain a head up position for short periods of time when being cuddled.  We'll happily take that and keep encouraging, watching and hoping for more improvements as time wears on.