Showing posts with label August 5th. Show all posts
Showing posts with label August 5th. Show all posts

Thursday, August 5, 2010

August 15th, 2010. AKA: Janna's Two and will be getting a baby sister for Christmas!

That's right, it's been ages again since I've posted but life  and time has had a way of slipping by quickly.

Janna is stable and doing well from a health standpoint, no seizures that we can identify, she's gaining weight well, her eyesight has improved, she's moving a little more than she used to but she's still very delayed.   No sitting up, rolling over, she's still floppy in her neck and trunk.

She is also learning to cry - yep no smiles but a discern-able cry is taking shape, with tears even!  I feel a bit bad about being happy about that, what normal parent in the world is happy about hearing their child cry?  Well we're not "normal" parents and we take joy in the strangest things around here.  We're still learning to make our peace with that and move on.

Still no laughing yet - but Janna HATES it when she hears laughter, something about the sound seems to be quite grating to her, she tenses up, arches and sometimes makes her crying sound to accompany the laughing she hears.  I hope someday she'll be able to get past that, as she's gotten past jumping at every sharp or loud sound that happens around or near her.

So we're about to embark upon a second adventure, with a baby sister due in December.   I'm excited and frightened at the same time, under the circumstances I know that's to be expected but it doesn't make it any easier to deal with.

Time for some Janna pictures, they always make me feel better.


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Tuesday, August 5, 2008

August 5, 2008 @ 12:27 am

I wasn’t at the hospital at all today, but Jenn tells me that baby Janna is much more responsive today and that she actually opened her eyes this evening.  Of course my first question to her was, “Did you get a picture?” But she did not unfortunately.
A resident at the hospital mentioned that the day 3 MRI showed something “abnormal” but wouldn’t go into detail over it.  I suppose we’ll get more details tomorrow.  There may be an intermediate MRI scan before Friday’s day 8 scan to further verify earlier findings.  I supose that a totally doped up child who had a double dose of phenobarbitol would have abnormal brain function anyway, but if you look at her, she looks to be perfectly normal and obviously a fighter, so we’re still optimistic as to her future.  Hopefully some more concrete informaiton will surface tomorrow.

6 Comments »

  1.  
    1.  
      1. Debra Roberts Said,

August 5, 2008 @ 8:48 am
OMG - You all are in my thoughts and prayers….
  1.  
    1.  
      1. Lynn Said,

August 5, 2008 @ 10:23 am
With all the love and care around you Janna, I too am optimistic that you will be allright. I look forward to meeting you.
  1.  
    1.  
      1. Jill (mom2labs) Said,

August 5, 2008 @ 12:17 pm
You are all in my thoughts and prayers.
  1.  
    1.  
      1. Pam Said,

August 5, 2008 @ 6:02 pm
Lot’s of healing thoughts and prayers are being sent out for Janna. ((Hug))
  1.  
    1.  
      1. Jane (lazylabs) Said,

August 5, 2008 @ 8:45 pm
Keeping Janna and you in my prayers.
  1.  
    1.  
      1. vida Said,

August 5, 2008 @ 11:44 pm
Jenn, Janna, Tim - you are in my prayers.